The inside story of how Apple’s ResearchKit was born

Daniela Hernandez, writing for Fusion:

“Imagine ten trials, several thousand patients,” said Friend, the founder of Seattle-based Sage Bionetworks, a nonprofit that champions open science and data sharing. “Here you have genetic information, and you have what drugs they took, how they did. Put that up in the cloud, and you have a place where people can go and query it, [where] they can make discoveries.” In this scenario, Friend said, patients would be able to control who could access their information, and for which purposes. But their health data would be effectively open-sourced.

Sitting in the audience that day was Mike O’Reilly, a newly minted vice president for medical technologies at Apple. A few months earlier, Apple had poached O’Reilly from Masimo, a Bay Area-based sensor company that developed portable iPhone-compatible health trackers. Now, he was interested in building something else, something that had the potential to implement Friend’s vision of a patient-centered, medical research utopia and radically change the way clinical studies were done.

This is a terrific story. But perhaps the best line of all was called out in John Gruber’s compelling Daring Fireball headline:

After Friend’s talk, O’Reilly approached the doctor, and, in typical tight-lipped Apple fashion, said: “I can’t tell you where I work, and I can’t tell you what I do, but I need to talk to you,” Friend recalls. Friend was intrigued, and agreed to meet for coffee.